Q&A with Heather Boerner, author of Positively Negative: Love, Pregnancy, and Science's Surprising Victory Over HIV

On August 1, I posted a review of Heather Boerner's book Positively Negative: Love, Pregnancy, and Science's Surprising Victory Over HIV.  As a writer, I'm often curious as to why other writers choose their topics and why they choose to focus on certain ones. So, as a follow-up to my review, here are some questions I asked Boerner:

Why did you write the book?

I wrote Positively Negative because I was blown away by how far the science had advanced and how few people outside the HIV community were aware of it. When I first talked to the Hartmanns in my book, the couple who had unprotected sex and had a baby without passing on the virus, something shifted for me. I began to hope that our collective relationship with HIV and people with HIV could be different—that it didn’t have to be a relationship based on aversion and fear, that we could see people with HIV as just like us, whoever that is. And really, the two couples in the book are the most normal people in the world. Their desire for babies is totally normal. And now that the virus has been tamed, it’s also safe.

What is it about HIV that you find fascinating?

The virus itself is fascinating. Our understanding of how HIV cloaks itself from the immune system, how it lingers for years—the recurrence of HIV in the so-called Mississippi baby is proof—is so interesting. But more than that, I’m fascinated by our cultural understanding of HIV. HIV, the big boogeyman, is really another character in the book. The *idea* of HIV vs. the reality. For many of us—and I counted myself among this number until after writing the book—our idea of HIV froze at its most horrifying stage. I watched The Normal Heart recently, the HBO film adaptation of one of Larry Kramer’s plays about HIV and I am still haunted by the deaths of those men and by the exploitation and humiliation they suffered at the hands of healthcare professionals. If this book taught me anything, it’s that HIV stigma still exists in the medical community. HIV won’t end until we root that stigma out. The emergence of a once-daily pill for HIV-negative people to prevent the spread of the virus is a real opportunity to change medical practitioners’ minds.

Obviously, we'd like everyone to read your book, but who do you think needs to read it the most?

The people who need it are the couples like the Hartmanns and the Morgans, and the non-infectious disease doctors and NPs (nurse practitioners) who treat people who may need or ask for PrEP. In doing the crowd funding campaign to get Positively Negative published, I offered a perk wherein a donor could speak to me on the phone about the book. The one person who took me up on that was a woman in Japan who’d found the book and is in this very situation. She desperately wants to know facts, and it’s so hard to get them. I want couples to feel less alone. And I’d love for healthcare providers who don’t think of HIV as in their wheelhouse to read it so they can feel comfortable prescribing PrEP or counseling their patients on this issue without their own fears coloring their practice.

Anything else you'd like to say?

Just that the other group of people who I think will relate to this book but may not think so at first glance are couples who have experienced trouble getting pregnant. This is a human story, a science story, and it’s a fertility story. I bet any woman who’s had trouble conceiving might find the story cathartic. I hope for everyone who reads this that they feel less alone. I also hope that those of us without anyone in our life with HIV, that we now feel like we do know someone with HIV, that our heart opens to this experience in a way that we are typically guarded against.


Now to my blog readers: Do you have any questions you think I should have asked?

Book Review and Discussion of Positively Negative: Love, Pregnancy, and Science's Surprising Victory Over HIV

Positively Negative: Love, Pregnancy, and Science's Surprising Victory over HIV is a book that made me bend my "I don't write book reviews" stance. I am asked regularly to review books, but it's not something I like to do. Since liking a book is very subjective, one I may dislike may be another's favourite - but I do make exceptions when I think a book is a must-read.

Positively Negative: Love, Pregnancy, and Science's Surprising Victory over HIV by Heather Boerner, is about couples that want to have a biological child, but the male is HIV positive. It's a short book - you can read it in one dedicated sitting if you want. But don't be fooled - Boerner uses her words wisely, weaving scientific information with real couples who have to make life-changing decisions.

When I graduated as a nurse in the early 80s, we just started to see our first patients with AIDS in the Montreal-area hospital where I worked. The fear was everywhere as healthcare professionals learned how serious the virus was and how the virus spread. Unfortunately, this was also the time when it was considered to be a "gay disease" and a "promiscuity disease," which delivered a whole other set of problems and issues.

HIV and AIDS forever changed how we worked with patients. When I studied nursing, we rarely ever used gloves. As students, we were only allowed to don gloves if we were going to be giving intimate care or had to clean up body fluids. Otherwise, gloves were forbidden because the skin-to-skin, the contact, was considered vital for a good connection with the patients. With HIV and AIDS, this changed. We were told we needed to assume that all patients were infected - universal precautions, it was called. If we treat all patients as infectious, we reduce our chances of being caught off guard and becoming infected ourselves. We were told to wear gloves whenever we touched a patient - even if giving a back rub. While I see the practicality in the advice, it changed how we saw and treated patients - and this way of thinking stayed with me all these years.

I don't work clinically any longer; I don't work with people who have HIV or AIDS. As s result, I've not really thought about it very much since those early days, other than when I read news stories. So when I bought Boerner's book, I wasn't sure what to think. I had the pleasure of meeting her in March and I listened as she talked about the project and what it meant to couples who shared their stories. I do remember thinking that breezy Denver night, "I never realized that having a biological baby with an HIV positive partner was even an issue to be discussed." I have to admit, I was taken aback at how little I knew of the topic and I waited for Boerner's book to be published.

The urge to have a baby is very strong among many women and it's no different for some who have HIV positive partners. And until recently, the risk of allowing such a pregnancy was unheard of - or it wasn't discussed. Boerner's book follows the paths of two couples who did go ahead and have naturally conceived children. She speaks with experts on both sides of the debate, and another mother who made the decision without medical advice or interventions.

It is well written, well researched, and worth your time. Let me know what you think if you read it.

Why you have to take health articles with a grain of salt (or a ton, in this case)

This morning, a Facebook friend posted a link to a story that declared that if you used sunscreen, you were more likely to die than if you didn't. In fact, the intro was: "According to a June 2014 article featured in The Independent (UK), a major study conducted by researchers at the Karolinska Institute in Sweden found that women who avoid sunbathing during the summer are twice as likely to die as those who sunbathe every day."

There is so much wrong with this sentence and the whole article itself. First of all, we all die. At least, at this point we still all die. What the future holds in terms of eternal life, we don't yet know.

The article, in case you haven't guessed, is anti-sunscreen. The author uses references such as this one from the journal Cancer, which doesn't say at all that sunscreen use will lead to an earlier death or that sunscreen causes melanoma, both of which the original article's author claims it says. The article says that if you use sunscreen, particularly the lower SPF types, you will likely spend more time in the sun, increasing your sun exposure, increasing your chances of developing skin cancer.

The article author also doesn't take into account that the people most likely to use sunscreen are people who are fair and who burn easily - and are by their genetics at higher risk of developing skin cancer. He also ignored that Australia, which has one of the highest rates of skin cancer in the world, is starting to see a decline with its campaign to get people either out of the sun or to protect themselves with clothing and sunscreen.

Outside of that one scientific reference, which the article's author completely misinterpreted for his own means, his only other references are to newspaper articles or website articles, which are not credible first-line sources.

Are there problems with sunscreens? There may be with some types, considering what is put into them to produce them, which is why we need to be careful about what we use. Are there problems caused by not using sunscreens - yes and it's been proven. The problems are called cancer. If you have concerns about sunscreen, find out more about them and the type you use. But this type of article, which is making its rounds through social media, is not educational or beneficial in any way - it is fear mongering.

Folks, if you want to spread news about health issues, real news, please be sure that the articles are written with good scientific backup. This particular article is crap and may do more damage than good.

Duh studies not just for the public

And we have another Duh Study for the Duh Study files.

A couple of weeks ago, I came across a study that told radiologists that the newer CT scanners exposed their patients to less radiation than the older ones. Considering that this is one of the goals when researchers develop the new machines, I figured that was pretty well a Duh Study. Almost like telling physicians that oxygen helps people live (that was a comment from my editor for this client). But today I came across yet another Duh Study meant for radiologists. Did you know that the more experience you have reading mammograms, generally the better you will be at reading them? Yes! It's true!

A published study that looked at Australian and U.S. radiologists said that the sensitivity in reading the images increased with experience. Good thing we have researchers studying these things.

Final week blogathon round-up

Week 4 is over and this week has been a bit challenging in terms of finding topics I wanted to write about. Here is what we discussed:

Yesterday, June 28, I posted about three blogs I like, as well as a list of over 100 bloggers who were also participating in this blogathon.

On Friday, I addressed a question I get frequently - "Have I read anything you've written?" Maybe...maybe not!

Thursday's post was an excuse to write about my quilting, in a piece about how crafting is good for the brain. I put some nice photos too. :-)

Wednesday's post was about soccer and head injuries. I watched the Netherlands win over Mexico today and saw some nasty head collisions. Ouch! But I'm glad that the Dutch won!

On Tuesday, I covered an important issue, that of midwives and how they save lives all over the world.

And the week started with an interesting piece (I thought) about how a clinic in Montreal is bringing healthcare to the homeless and marginalized in Montreal.

Lots of variety!

Over 100 bloggers!

As a writer, I am fortunate to know many other writers - and several of them have blog, sites, or projects of their own. So today, I wanted to share with you three that I like. I hope I'm not hurting any feelings by not writing about all the blogs I like, but there would be so many and I'd still accidentally leave some out.

Jennifer Fink, a nurse, health writer, and mom to four boys started a new venture last year, BuildingBoys.net. She has great stuff on the issues surrounding raising boys. In my opinion, it's worth reading even if you don't have a son or your sons are grown up. I know some of her posts have made me stop and think about certain issues.

Monica Bhide is a food writer and a great all around person. Her blog talks about food, writing about food, and life in general. She is the author of a few cookbooks, including Modern Spice and The Everything Indian Cookbook.

Moving over to writing and earning money writing, Kelly James Enger's blog is chock full of great advice. Called Dollars and Deadlines, Kelly's posts are helpful for both beginning and experienced writers. Being a professional writer, working for yourself means that you have to make all the decisions yourself too. Sometimes, you need someone like Kelly to tell you the obvious (at least I do) or to explain the more complicated.

And here is a list of bloggers who were participating in this year's blogathon - which is almost over!

1. Nick DiUlio Twenty Pounds Of Headlines 
2. Jennifer Allen Pierced Wonderings 
3. David Allen David Allen in Catalonia 
4. Lois Alter Mark Midlife at the Oasis 
5. Karen Bannan Natural as Possible Mom 
6. T.A. Barnhart Carpe Bucko 
7. Pat Blumer patblumer 
8. Sue Ann Bowling Homecomingbook 
9. Deborah Brauser Travel Browsing with Deb 
10. Beverly Burmeier Going on Adventures 
11. Margarette Burnette Coupons and Kids 
12. Susan Caba Resale Evangelista 
13. Caren Chesler The Dancing Egg 
14. Doug Glenn Clark Author with Guitar 
15. Julie Cleveland Blue Morning Expressions Bluprint 
16. Katie Coakley Katie on the Map 
17. Tammy Petty Conrad tammyyoga 
18. Damage Control Damage Control Radio 
19. John Cooke CookeCapeMay 
20. Brandee Crisp Never Pity The Past 
21. Ruth Curran Cranium Crunches: The Quest to Find my Keys 
22. Katie Dancause TLC: The Lactating Catholic 
23. Mikaela D’Eigh La Belle Dame de Merci 
24. Laura Depta Depta Being Depta 
25. Jackie Dishner Phoenix Living on the Cheap 
26. Kristen Fischer Every Last Breath 
27. Kevin Flavin Carlisle Group 
28. Barb Freda Babette Feasts 
29. Laura French Words Into Action 
30. David Geer David Geer Talks Tech, Take Two 
31. Kristen Gillette Adult Ballerina Project 
32. Jenna GlatzerHot Diggity! 
33. Reyna Gobel Graduation Debt 
34. Jennifer Goforth Gregory The Content Marketing Writer 
35. Natasha Golinsky Next Level Nonprofits 
36. Sandra Gordon BabyProductsMom.com 
37. Debra Gordon Debra Gordon 
38. Carol Graham Battered Hope 
39. Yael Grauer Yael Writes 
40. Rose Green Drop 50 Fast 
41. Shihaam H Misplaced Indulgences 
42. Holly Hammersmith Keeping a Healthy Home and Lifestyle 
43. Elizabeth Hanes RN2Writer 
44. Heather harris Heather Harris 
45. Jennifer Harris Ponderings of an Elect Exile 
46. Christina Hernandez Sherwood Christina Hernandez Sherwood 
47. Megan hicks Life, the Universe, and Everything 
48. Joan Hocky grace and dirt 
49. Lisa Hubbell Landguppy Productions 
50. Leah Ingram Suddenly Frugal 
51. Kelly James-Enger Dollars and Deadlines 
52. Gauri Kekre Mind Brew 
53. Amanda Klenner Natural Living Mamma 
54. Alice Knisley Matthias herbinkitchen.com 
55. Nancy Koerbel Settled Work 
56. Megan Kopp Time. Travel. Trek. 
57. Elizabeth Kricfalusi Tech for Luddites 
58. Jody Kristina Wolfpack Lovin 
59. Nicky LaMarco Freelance Writing 4 Beginners 
60. Marla Lawrence bpnurse 
61. Christina Le Beau Spoonfed: Raising kids to think about the food they eat 
62. Annie Logue The Root of All 
63. Sarah Ludwig Parenting by Trial and Error 
64. Kirsten Madaus Farm Fresh Feasts 
65. Katy Manck BooksYALove 
66. Alana Mautone Ramblin’ with AM 
67. Jen Miller Notes from a Hired Pen 
68. Gwen Moran Biziversity 
69. Billie Noakes The BillieGram 
70. Anne Noble Mac’s Musings 
71. Holly Ocasio Rizzo California Wildwoman 
72. Holden Page Holden Page 
73. Andrea Payan Mrs Payan Reads 
74. Michele Phillips Coffee Cups and Lesson Plans 
75. Jennie Phipps What Freelance Success Says 
76. Jaya Powell Jaya Wrote This 
77. Sreeja Praveen The Alter Ego 
78. Shalini R Tale of Two Tomatoes 
79. Michelle Rafter WordCount: Freelancing in the digital age 
80. Kate Reilly Kathleen M. Reilly 
81. Meredith Resnick Reflections on Narcissism: Surviving the Self-Involved 
82. Meredith Resnick The Writer’s [Inner] Journey 
83. Corinne Rodrigues From 7Eight 
84. Pia savage courting destiny 
85. Joyce Schmalz The Skinny Pear 
86. Damita Shanklin Damita’s Life 
87. Irene B. Smithi Bentmom.com 
88. Randy Southerland Southwrite 
89. Vidya Sury Your Medical Guide 
90. Darci Swisher He Eats What I Make 
91. Jean Thilmany upanddownadoption 
92. Vilissa Thompson The World Through the Eyes of Ms. V 
93. Lori Tripoli Bashful Adventurer 
94. Marcia Layton Turner Association of Ghostwriters 
95. Paul Vachon Vachon’s Curiosity Shop 
96. Paula Vergara Paula Vergara 
97. Marijke Vroomen Durning Marijke: Nurse Turned Writer  (that's me!)
98. Rebecca L. Weber Backstory 
99. Susan Weiner Investment Writing 
100. Melissa Willis Ever Growing Farm 
101. Michele “Wojo” Wojciechowski My Life with Riley 
102. Lindsay Woolman Reasons to Live - 

Have I read anything you've written?

When people find out that I'm a health writer, one of the first questions I'm usually asked is "Do you write for magazines?" or "Have I read anything you've written?" The first question is easy - yes, I have. The second one, I'm never really sure what to answer. It's possible that you may have read something I wrote without knowing it.

Much of what I write isn't bylined. That means it doesn't say "By Marijke Vroomen Durning" under the title or at the end. There are several reasons for this. I may be hired to write content for a site, as I do for Sepsis Alliance. I may write brochures or newsletters for a client that are either online or in print. For one client, I summarize medical studies for physicians and while I did have my byline on those pieces, since I do several a week they were pretty well all you could find if you Googled my name. This isn't so helpful if I'm trying to market myself as a health writer for the general public. I still write them, but now as a "staff writer." And, occasionally I'll do some ghost writing for other clients, which means I write something for which someone else takes credit. That's my least favorite type of writing. I'm completely ok with not having my name on something I've written, but to see someone else's name on my work, that's different.

But back to things I've written that people may have read. I've written for a few magazines, including Costco Connection, Alive, Montreal Home, The Quilter, and Women of Influence. For a few months last year, I wrote for Forbes.com. There, I wrote about several things, including the importance of having a carbon monoxide detector in your home, if e-cigarettes are safe, and if your sexual identity should be part of the demographic information in your medical records.

I've also written for a couple of health news services, where wrote about breaking study news, such as how amputations related to diabetes complications were going down in numbers, and obesity may raise the risk of migraines. I've also written for popular sites that want fast, punchy, friendly pieces, such as homework tips for children with ADHD, and why practicing fire drills at home is essential.

But not everything is about coping with or preventing illnesses. Sometimes I have a bit of fun or I reflect on things, like with this article/essay, Every Patient Has a Story. I've also written some funny pieces for some nursing sites that were a nice break from the heavier health and medical news.

So, have you read something I've written? It's entirely possible but we may never know.